European Platform on Rare Disease Registration launched - registration can start
The European Platform on Rare Disease Registration (EU RD Platform) developed by the Commission's Joint Research Centre (JRC) in collaboration with DG SANTE has been launched and is accessible online at the following link: https://eu-rd-platform.… more
ENCR endorsement of the Toronto Childhood Cancer Stage Guidelines
The ENCR Steering Committee endorses and encourages the active Use of the published Toronto Childhood Cancer Stage Guidelines by Cancer Registries. Tumour-specific staging systems have been developed over many years. However, for many childhood cancers, more than one system is in use for the same… more
New ENCR Steering Committee election rules
New rules for the election of ENCR Steering Committee members have been approved at the 69th ENCR Steering Committee meeting on 17 January 2019. These rules will be applied at the next elections, in 2021. See more information here.
ECIS web-application report
  The technical report describes the ECIS web-application, released in February 2018. - Description and framework of the European Cancer Information System and the ECIS web application - Getting started with the ECIS web application - Description of the projects and studies included in the ECIS… more
IPAAC Joint Action INNOVATIVE PARTNERSHIP FOR ACTION AGAINST CANCER
The IPAAC Joint Action INNOVATIVE PARTNERSHIP FOR ACTION AGAINST CANCER started on April 1st 2018 and involves 40 partners from 24 European countries. The Italian-led IPAAC WP on Cancer Information and Registries sets to pilot the integration of population based cancer registry datasets with… more
Training on Cancer Registry Data-collection and Comparability
JRC and ENCR organised on 3-4 May 2017 a training event on Cancer Data Collection and Comparability with one day devoted to issues related to data collection, and the second day to quality aspects of data analysis. A specific session on childhood cancer registration was included. The course was… more
Training on Quality of Cancer Registry Data, Baveno, 5 Oct 2016
A Training Workshop on Quality of Cancer Registry Data took place on 5 October 2016, as a side event to the Scientific Meeting and General Assembly. About 50 participants attended the workshop which covered the process of data quality evaluation, methods for assessing the completeness of data, use… more
2016 - Joining forces for better cancer registration in Europe
Population-based Time-to-event Analyses International Conference 2016
31 August- 2 September 2016, London, UK
NCRI Cancer Conference
1-4 November 2015, Liverpool (UK) The NCRI Cancer Conference will highlight the latest basic, translational and clinical cancer research. More information on the conference website.
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