Tools for Registries
In order to enable cancer registries to perform data quality checks and to test the adherence of their data to the required format of the ENCR-JRC data calls, starting from 2015 the JRC has been developing the JRC–ENCR Cancer Registries Data Quality Check Software (QCS).
The present Version 2.1.2 of the JRC-ENCR QCS is based on the protocol for the 2022 data call, and the experience gathered after validating over 30 million cases from around 150 population-based cancer registries in 35 European Countries with previous JRC-ENCR QCS versions. In addition, feedback from European cancer registries was taken into account for the improvement of the JRC-ENCR QCS.
The Quality Check Software Kit also includes the CVS Data Structure Converter to assist users (with Windows operating systems) in the creation of incidence files compatible with the QCS according to the latest ENCR-JRC call for data protocol.
Version 2.1.2 of the JRC-ENCR Quality Check Software, includes software upgrades and the revision of the data quality checklist, based on:
- JRC Technical report 2023: A Common data quality check procedure for European CRs, updated Dec. 2023
- Experience in validating data from data call 2015
- Call for data protocol 2022
- Feedback from CRs
- TNM Edition 8
Compared to the previous version 2.1.1, version 2.1.2 includes:
- The update of consistency checks between TNM values and basis of diagnosis
- The update of allowed topography codes according to ICD-O-3
- The update of the user compendium
Documents available for download:
- QCS Kit (QCS version 2.1.2 + CSV Data Layout Converter 1.1)
- JRC Technical report 2023: A Common data quality check procedure for European CRs, updated Dec 2023
The suite of Stata (Version 8.0 or higher) macros for cancer incidence/mortality short-term predictions based on T. Hakulinen and T. Dyba method are available as a zipped file.
Once unzipped, please read the Word (or pdf) document help_pred_stata.doc to receive basic instructions on how to use the programs.
CanStaging+ is a tool developed by a collaboration between the Northern Ireland Cancer Registry (NICR), the International Agency for Research on Cancer (IARC), the Union for International Cancer Control (UICC) ), and Cancer Council Queensland (CCQ). The tool is designed to help maximise the availability, standardisation and comparability of cancer staging internationally.
The tool available here, provides automatic calculation of the international TNM staging classification versions 7 and 8 for a variety of tumour sites – breast, cervix, liver, lung, oesophagus, ovary, pancreas, prostate and stomach. Colorectal cancer may be staged using the TNM staging versions 5 and 8. The Tool also provides automatic calculation of stage for childhood cancers using the business rules developed for the Toronto Paediatric Cancer Stage Guidelines.