Tools for Registries

The usefulness and reliability of information provided by cancer registries (CRs) depends on the quality of the data collected. Therefore, in 2014, a Working Group was set up with the task of establishing a comprehensive and standardised list of data quality checks to be adopted by European CRs and European projects. The Working Group has produced a proposal for 'One common procedure for data quality checks for European cancer registries' (2014, updated in 2018). The proposal included agreements on case definition, variables to be collected, and their format and internal consistency rules.
The JRC has developed a software to enable CRs to perform data quality checks independently, testing their data against the requirements of the 2015 ENCR-JRC Call for Data. The JRC-ENCR Quality Check Software (QCS) represents a first step in the process of providing CRs with a user friendly data-checking, and quality control tool. The aim is to standardise the procedures to be followed by European CRs when submitting data in order to improve their quality and comparability.

Version 1.8.1 of the JRC – ENCR Cancer Registries Data Quality Check Software, launched on 17 June 2019, includes the following features:

  • checks on the data files format (for incidence, mortality, lifetables and population) and on variables names and order according to the data call protocol
  • verification of variables' values
  • cross checks among variables (internal consistency)
  • check of multiple primary malignant tumours

In comparison to version 1.7, version 1.8.1 of the software includes:

  • updated morphology families used by the Multiple Primary Malignant Tumour checks
  • ability to check Multiple Primary Malignant Tumours also when there are errors in variables not related to morphology and topography
  • the creation of a separate file reporting on Multiple Primary Malignant Tumours
  • ability to run on Windows and Linux operating systems as well as macOS
  • ability to run in background from command line

The suite of Stata (Version 8.0 or higher) macros for cancer incidence/mortality short-term predictions based on T. Hakulinen and T. Dyba method are available as a zipped file.

Once unzipped, please read the Word (or pdf) document help_pred_stata.doc to receive basic instructions on how to use the programs.