The ENCR and the JRC have organised the 2015 ENCR-JRC Call for Data intended for all the European Cancer Registries in order to build a unique anonymised database of cancer data. It is the wish of the ENCR to reduce the number of data calls due to the heavy workload on Cancer Registries responsible for submitting cleaned data to various European studies. It was agreed by the ENCR Steering Committee that there should be a single ENCR-JRC Call for Data, to serve all European projects, through a data-brokering service offered by the ENCR Secretariat and summarised in this document. The protocol for this call serves the needs of all Cancer Registry data users and seeks to avoid multiple separate calls for different studies.
The data file format, which forms part of this protocol, is provided in the submission guidelines for the 2015 ENCR-JRC Call for Data (Version 1.1)
Following a specific request, the Call for Data Protocol was translated into Russian.
Cancer Registries will be able to fill in a questionnaire after the data submission. An e-mail with instructions will be sent to the cancer registries submitting their data, and the questionnaire will be set up using the EU Survey tool. A PDF file of the Questionnaire for the 2015 ENCR-JRC Call foe Data is available here.
ENCR-JRC PortalCancer Registries submit their data files through the ENCR-JRC Portal, thus benefiting from:
- High security and speed of data transfer
- Automated data submission and acknowledgement
- One submission for several European projects
- Build-in mechanisms to read, accept and sign agreements
- Record keeping of all transactions performed to allow transparency and accountability