2022 Data Call
The ENCR and the Joint Research Centre of the European Commission (JRC) are happy to announce the launch of the data call for all European population-based Cancer Registries, including general (all age and all tumours) as well as specific registries (childhood cancer registries, specific topographies or morphologies) in order to update the European Cancer Information System (ECIS).
In preparation to the new call, the JRC has made transparent the procedures regulating data collection and processing, and described related data protection safeguards. Purpose and conditions of all processing operations are accessible to any interested person in a data protection record.
Data submission portal
The portal hosted by the JRC on a secure server, will handle the submission of individual-level data following the European Commission rules on data protection. The portal will be continually open to allow population-based Cancer Registries to update their data at any time, preferably on a yearly-basis. Please access the portal here, and follow the portal user manual for instructions.
Data Call Protocol
Data should be submitted according to the protocol published, available here.
Data Call questionnaire
A link to the data call questionnaire is available at the time of submission inside the registry-specific space of the portal. Please note that filling in the questionnaire is required to complete the data submission.
The deadline has been extended until 31 December 2022. Data files submitted by this date will be considered for the computation of updated indicators in the ECIS web application, to be released in the first half of 2023.
Starting from 2023, for an up to speed contribution to the ECIS, the submissions received by 31 January of each year will be taken into account for the annual update of the ECIS indicators (accordingly to the specifications in the data submission protocol).
ENCR-JRC Collaboration Agreement
In view of this and future data calls the signature of the Collaboration Agreement between the JRC and the ENCR registries is a pre-requisite for the exchange of cancer registry individual records (personal data), according to the instructions received earlier in the year.
Please do not hesitate to contact the ENCR Secretariat should you need any support.