European Platform on Rare Disease Registration launched - registration can start
The European Platform on Rare Disease Registration (EU RD Platform) developed by the Commission's Joint Research Centre (JRC) in collaboration with DG SANTE has been launched and is accessible online at the following link: https://eu-rd-platform.… more
ENCR endorsement of the Toronto Childhood Cancer Stage Guidelines
The ENCR Steering Committee endorses and encourages the active Use of the published Toronto Childhood Cancer Stage Guidelines by Cancer Registries. Tumour-specific staging systems have been developed over many years. However, for many childhood cancers, more than one system is in use for the same… more
New ENCR Steering Committee election rules
New rules for the election of ENCR Steering Committee members have been approved at the 69th ENCR Steering Committee meeting on 17 January 2019. These rules will be applied at the next elections, in 2021. See more information here.
ECIS web-application report
  The technical report describes the ECIS web-application, released in February 2018. - Description and framework of the European Cancer Information System and the ECIS web application - Getting started with the ECIS web application - Description of the projects and studies included in the… more
IPAAC Joint Action INNOVATIVE PARTNERSHIP FOR ACTION AGAINST CANCER
The IPAAC Joint Action INNOVATIVE PARTNERSHIP FOR ACTION AGAINST CANCER started on April 1st 2018 and involves 40 partners from 24 European countries. The Italian-led IPAAC WP on Cancer Information and Registries sets to pilot the integration of population based cancer registry datasets with… more