Training on Cancer Registry Data-collection and Comparability

JRC and ENCR organised on 3-4 May 2017 a training on Cancer Data Collection and Comparability with one day devoted to issues related to data collection, and the second day to quality aspects of data analysis. A specific session on childhood cancer registration was included.

Basic principle
The basic principles of cancer registration Harry Comber
Exercise What data sources are available to you?What are their strengths and weaknesses?How do you decide whether to use a source or not?
Coding systems
Coding primary site Nadya Dimitrova Coding tumour morphology Otto Visser
Exercise Coding exercises in topography and morphology Answers Otto Visser
Recommendations
Introduction to ENCR and IACR recommendations Emanuele Crocetti/Carmen Martos
Exercise Coding exercises based on ENCR recommendations
Staging and Treatment
Coding stage: TNM and other staging systems Liesbet Van Eycken/Otto Visser Introduction to coding treatments – sources, coding systems Liesbet Van Eycken
Exercise TNM exercises Answers Liesbet Van Eycken/Otto Visser
Childhood cancer
1) Introduction to childhood cancer registration: differences in data collection from adults; 2) Collecting long-term follow-up data on children with cancer; 3) ICCC update Eva Steliarova-Foucher
Exercise Evaluation of a childhood cancer dataset
Quality control and software
Routine quality control in practice Nadya Dimitrova ENCR/JRC quality check software: its use in practice Francesco Giusti/Carmen Martos
Exercise Interpreting and using the ENCR/JRC quality check outputs
Staff training
Registry Manual, Standard Operating Procedures, Staff Training Harry Comber Nadya Dimitrova
Outputs
Preparing data for external users, registry reports Harry Comber

For any questions regarding the meeting, please contact JRC-ENCR@ec.europa.eu