The EU-funded CANDLE project aims to support establishment of National Cancer Data Nodes (NCDNs) in member states and associated countries in alignment with the European Health Data Space. Through 5 core functionalities (https://data.europa.eu/doi/10.2777/8011798) these NCDNs will improve the reuse of cancer data for research, innovation and policy making:
- Provide tools to improve data quality of cancer data at source
- Provide tools for cancer data analysis to be used in secure processing environments (SPEs)
- Ensure all cancer datasets have a metadata record in the EU dataset catalogue
- Provide advice on common variables for cancer datasets
- Capacity building at national level
Additionally, the network of NCDNs is designed to support the European Initiative to Understand Cancer (UNCAN.eu, a federated European cancer research data infrastructure) and European Cancer Patient Digital Centre (ECPDC, a European network of national digital infrastructures for cancer patients).
As cancer registries are an important stakeholder on the national level and in some countries might even be the institute that hosts the NCDN, we would like to provide the opportunity to gain insight into developments from the first year within CANDLE by opening part of our annual meeting for online participants.
Agenda (all times in CEST)
Consortium meeting first day - 2 June
8:00-8:30 Welcome and introduction
8:30-8:45 National Cancer Data Node concept
8:45-10:00 WP updates
10:00-10:20 Coffee break
10:20-11:00 Knowledge exchange: National Cancer Data Nodes in motion (Germany, Ireland and Lithuania)
11:00-12:00 Panel discussion: what do countries need from CANDLE?
12:00-13:30 Lunch break
13:30-14:30 CANDLE resource kit - What's in it for you?
Consortium meeting second day - 3 June
8:00-8:20 Implementation and collaboration
8:20-9:00 Keynote: digital transformation
9:00-10:00 Real-life users’ journey from national cancer data node to UNCAN and ECPDC platform
10:00-10:20 Coffee break
10:20-11:55 Roadshow: How EU initiatives interconnect on the national level (France, Luxembourg and Portugal)
11:55-12:00 Meeting closing