In this issue: we highlight CancerWatch’s first-year achievements in strengthening cancer registry data across Europe and the ENCR General Assembly on 16 December.
News
ENCR Steering Committee Elections: Update on the selection process
The number of candidatures received for the ENCR Steering Committee matched the number of available positions. The current Steering Committee has therefore decided not to hold a vote and has invited the candidates to serve for the 2027–2029 term, beginning in January 2027. The composition of the new Steering Committee will be announced during the ENCR General Assembly, scheduled on December 16, 2026.
Consultation launched on the right to be forgotten for cancer survivors
The European Commission has launched a targeted consultation on the right to be forgotten for cancer survivors, aiming to improve fair access to financial services, such as mortgage life insurance. Cancer survivors, representative organisations, the medical community and other stakeholders are invited to contribute by 27 October 2026
CancerWatch marks its first year
The EU4Health Joint Action CancerWatch marks its first year of work to strengthen the timeliness, quality and comparability of cancer registry data across Europe. Highlights include a survey involving 192 registries, support for participation in the 2026 ECIS data call, and progress on harmonised quality indicators and tools for survival and prevalence analysis. These activities lay the foundations for stronger cancer surveillance and more comparable European cancer data.
New ECIS factsheet: Prostate cancer in EU‑27/EFTA countries
A new factsheet on prostatecancer in EU‑27 and EFTA countries was published in the ECIS website, based on ECIS 2024 incidence and mortality estimates and observed historical data from cancer registries. The factsheet presents summary figures on prostate cancer incidence, mortality, geographical variation and trends.
Events
Colleagues from ENCR member cancer registries are invited to participate to the ENCR General Assembly, where the activities of the outgoing Steering Committee and ENCR JRC collaboration will be presented. Please register to receive the meeting invitation and joining details. The programme will follow.
ENCR experts will deliver an online workshop on the new recommendations for recording recurrence, progression and transformation (RPT) episodes in population-based cancer registries. The programme will include an overview of CancerWatch survey results on current RPT practices, a detailed presentation of the ENCR recommendation, registry case studies from selected Cancer Registry, and practical exercises to support implementation in routine data collection.
ENCR experts will deliver an online training on the recommendation for recording cancer treatment in population-based cancer registries. The session will present results from the CancerWatch survey on current treatment recording practices, report on analyses of treatment data submitted to the ECIS database, and use specific examples to illustrate key coding rules and common challenges in routine registry work.
Tools
ENCR e-Learning modules »
The e-Learning modules aim to facilitate the training of cancer registrars in coding topography, morphology and cancer stage, implementing the relevant international classifications.
Quality Check Software (QCS 2.4.1) »
Version 2.4.1 of the JRC-ENCR Quality Check Software includes new univariate and multivariate checks for follow‑up and staging variables and a new summary output file. Cancer registries are encouraged to check regularly for the most up-to-date version on the ENCR website.
Complementary to the QCS, the CSV Data Structure Converter 1.3 is the additional tool developed (for Windows operating systems) to facilitate the preparation of incidence, mortality, population and life table files according to the latest ECIS call for data protocol.
Complementary to the QCS, the CSV Data Structure Converter 1.3 is the additional tool developed (for Windows operating systems) to facilitate the preparation of incidence, mortality, population and life table files according to the latest ECIS call for data protocol.
Ask an Expert »
The Ask an Expert section is available on the ENCR website for those who wish to submit questions about difficult-to-code cancer cases. Questions may be submitted in the original language.
ENCR STEERING COMMITTEE
98th ENCR SC meeting
The ENCR Steering Committee met on 12 June 2026, at the JRC in Ispra, Italy. Summary minutes are available for consultation.
Please don't hesitate to send us relevant news and events that may feature in the next issue of the ENCR Newsflash.