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2015 ENCR-JRC call for data: updates

We are pleased and proud to announce that data from 18 European countries and more than 70 Cancer Registries have been already submitted through the ENCR-JRC portal! We kindly remind you that the ENCR-JRC Call for Data is still open, centralizing the data acquisition procedures to serve the various European projects and studies data demands.
While the deadline for EUROCARE-6 (EUROCARE) already expired, please note that those for Cancer Incidence in Five Continents - Volume XI (IARC) and Incidence and Mortality in Europe (ENCR-JRC) are 1 November 2015. The data collection is still on-going! If you haven't submitted your data so far, we wait for your contribution!. More information is available at this link.

2015 ENCR-JRC call for data: updates (3)

We are pleased and proud to announce that data from 18 European countries and more than 70 Cancer Registries have been already submitted through the ENCR-JRC portal! We kindly remind you that the ENCR-JRC Call for Data is still open, centralizing the data acquisition procedures to serve the various European projects and studies data demands.
While the deadline for EUROCARE-6 (EUROCARE) already expired, please note that those for Cancer Incidence in Five Continents - Volume XI (IARC) and Incidence and Mortality in Europe (ENCR-JRC) are 1 November 2015. The data collection is still on-going! If you haven't submitted your data so far, we wait for your contribution!. More information is available at this link.

ENCR-JRC project: Incidence and Mortality in Europe

We get closer to the deadline of the data submission for the ENCR-JRC project "Incidence and Mortality in Europe"!

The ENCR and JRC together have launched the "Incidence and Mortality in Europe" project, aimed at creating a standardized and comparable database for monitoring cancer incidence and mortality and to provide regular information on the burden of cancer in Europe. The output from the European cancer incidence and mortality database will display and compare epidemiological indicators on cancer incidence and mortality, deepening the analysis by cancer site, sex, age group, calendar period, geographic area, and morphology groups. The outcome of the analysis will be disseminated through the several ENCR-JRC channels.
Research topics suggested by cancer registries will be highly appreciated, and their collaboration to write scientific papers (contribution or full responsibility) duly acknowledged. Cancer registries willing to contribute should express their wish ticking the ENCR-JRC protocol when submitting their data files through the ENCR-JRC Portal. The data call was launched on June 2015, and the deadline for data submission is 1 November.
If you want to know more, please find here more detailed information in the ENCR-JRC "Incidence and Mortality in Europe" protocol.
Looking forward to your contribution!

JRC Workshop on Pancreatic Cancer

5 October 2015, Madrid (Spain)

The Acknowledging the relevance and magnitude of pancreatic cancer among the European population, the JRC considers that collaboration between the EU Multi-Stakeholder Platform on Pancreatic Cancer (PancreOs) and European population-based cancer registries is essential to gain a better understanding and therefore improve the healthcare of patients diagnosed with this disease.
To this purpose, the JRC organized a one-day Workshop on 5 October at the Spanish National Cancer Research Centre in Madrid (Spain), involving the ENCR, the Spanish Network of Cancer Registries (REDECAN), the PancreOs team and JRC experts. The aim of the meeting was to discuss the feasibility of carrying out an exploratory pilot study in selected areas covered by population-based cancer registration in Spain. The results will be the base for extending the experience in other European countries.

Please find here the agenda of the workshop.
The conclusions of the workshop on pancreatic cancer will be presented at the 3rd EU Multi-stakeholder Platform on Pancreatic Cancer meeting, at the European Parliament Brussels (Belgium) on 10 November 2015.

World Medical Association (WMA) draft Declaration

The WMA have produced a draft declaration on ethical considerations regarding health databases and biobanks. This draft is intended for open consultation after acceptance by the Executive Committee for the WMA.  The document is available online.