Recommendations

Marked differences in practice exist between cancer registries, for example, with respect to data sources, definitions and processing methods.
To make cancer registry data comparable, which is one of the main aims of the Network, it is important that common rules and definitions are used.

Recording and Reporting of Urothelial Tumours

Published 2022

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Incidence Date

Published 2022
Previous versions 1995, 1997

The Toronto Childhood Cancer Stage Guidelines The ENCR Steering Committee endorses and encourages the active use of the published Toronto Childhood Cancer Stage Guidelines by Cancer Registries. Read more.

Published 2016

Quality check harmonization

Published 2014

Haematological cancers

Published 2014

Data protection EUROCOURSE-ENCR

Published 2012
Previous version 2011

Standard dataset

Published 2005

Multiple Primaries

Published 2004
Previous versions 1995, 2000

Bladder Tumours

Published 1995

Tumours of the Brain and Central Nervous System

Published 1998

Basis of Diagnosis

Published 1999

Non-Melanoma Skin Cancers

Published 2000

Method of Detection in Relation to Screening

Published 2001

Confidentiality in Cancer registration

Published 2002

Condensed TNM for Coding the Extent of Disease

Published 2002

Structured Registry Review

 

Working Groups

Working Groups have been established to examine specific topics, identified as potentially problematic. These expert working groups are constituted of 3-4 people, selected by the ENCR Steering Committee.
Their task is to study the problem and make recommendations for the cancer registries.

Urothelial Carcinoma Working Group The ENCR working group on urothelial tumours has completed its work and proposes a new set of recommendations. Download draft recommendations. The consultation phase to the registries is now over.

 

Working Group on basis of diagnosis The ENCR working group on basis of diagnosis has completed its work and proposes a new set of recommendations that are now in the consultation phase to the registries.. The aim of the basis of diagnosis is to quantify the likeliness of the diagnosis of cancer. This is particularly relevant in the absence of pathological confirmation of the cancer. Download draft recommendations. For commenting, please use the online form.

 

Working Group on treatment data harmonisation The ENCR working group on treatment data harmonisation in European cancer registries was established on June 2021 as a key step to provide cross-comparisons between regions and countries.

 

Working Group on ENCR standard dataset A new ENCR working group has been established to define the standard dataset for European population-based cancer registries.

 

Working Group on cancer recurrences A new ENCR working group on tumour recurrences is being established.