Recommendations

Marked differences in practice exist between cancer registries, for example, with respect to data sources, definitions and processing methods.
To make cancer registry data comparable, which is one of the main aims of the Network, it is important that common rules and definitions are used.
Incidence Date
Published 2022
Previous versions 1995, 1997
The Toronto Childhood Cancer Stage Guidelines The ENCR Steering Committee endorses and encourages the active use of the published Toronto Childhood Cancer Stage Guidelines by Cancer Registries. Read more.
Published 2016
Quality check harmonization
Published 2014
New recommendations on haematological cancers
Published 2014
Data protection EUROCOURSE-ENCR
Published 2012
Previous version 2011
Standard dataset
Published 2005
Multiple Primaries
Published 2004
Previous versions 1995, 2000
Bladder Tumours
Published 1995
Tumours of the Brain and Central Nervous System
Published 1998
Basis of Diagnosis
Published 1999
Non-Melanoma Skin Cancers
Published 2000
Method of Detection in Relation to Screening
Published 2001
Confidentiality in Cancer registration
Published 2002
Condensed TNM for Coding the Extent of Disease
Published 2002
Structured Registry Review
 

Working Groups

Working Groups have been established to examine specific topics, identified as potentially problematic. These expert working groups are constituted of 3-4 people, selected by the ENCR Steering Committee.
Their task is to study the problem and make recommendations for the cancer registries.

Urothelial Carcinoma Working Group The ENCR working group on urothelial tumours has completed its work and proposes a new set of recommendations. Download draft recommendations. The consultation phase to the registries is now over.

 

Working Group on basis of diagnosis The ENCR working group on basis of diagnosis has completed its work and proposes a new set of recommendations that are now in the consultation phase to the registries.. The aim of the basis of diagnosis is to quantify the likeliness of the diagnosis of cancer. This is particularly relevant in the absence of pathological confirmation of the cancer. Download draft recommendations. For commenting, please use the online form.

 

Working Group on treatment data harmonisation The ENCR working group on treatment data harmonisation in European cancer registries was established on June 2021 as a key step to provide cross-comparisons between regions and countries.

 

Working Group on ENCR standard dataset A new ENCR working group has been established to define the standard dataset for European population-based cancer registries.

 

Working Group on cancer recurrences A new ENCR working group on tumour recurrences is being established.