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ENCR-JRC project: Incidence and Mortality in Europe

We get closer to the deadline of the data submission for the ENCR-JRC project "Incidence and Mortality in Europe"!

The ENCR and JRC together have launched the "Incidence and Mortality in Europe" project, aimed at creating a standardized and comparable database for monitoring cancer incidence and mortality and to provide regular information on the burden of cancer in Europe. The output from the European cancer incidence and mortality database will display and compare epidemiological indicators on cancer incidence and mortality, deepening the analysis by cancer site, sex, age group, calendar period, geographic area, and morphology groups. The outcome of the analysis will be disseminated through the several ENCR-JRC channels.
Research topics suggested by cancer registries will be highly appreciated, and their collaboration to write scientific papers (contribution or full responsibility) duly acknowledged. Cancer registries willing to contribute should express their wish ticking the ENCR-JRC protocol when submitting their data files through the ENCR-JRC Portal. The data call was launched on June 2015, and the deadline for data submission is 1 November.
If you want to know more, please find here more detailed information in the ENCR-JRC "Incidence and Mortality in Europe" protocol.
Looking forward to your contribution!

JRC Workshop on Pancreatic Cancer

5 October 2015, Madrid (Spain)

The Acknowledging the relevance and magnitude of pancreatic cancer among the European population, the JRC considers that collaboration between the EU Multi-Stakeholder Platform on Pancreatic Cancer (PancreOs) and European population-based cancer registries is essential to gain a better understanding and therefore improve the healthcare of patients diagnosed with this disease.
To this purpose, the JRC organized a one-day Workshop on 5 October at the Spanish National Cancer Research Centre in Madrid (Spain), involving the ENCR, the Spanish Network of Cancer Registries (REDECAN), the PancreOs team and JRC experts. The aim of the meeting was to discuss the feasibility of carrying out an exploratory pilot study in selected areas covered by population-based cancer registration in Spain. The results will be the base for extending the experience in other European countries.

Please find here the agenda of the workshop.
The conclusions of the workshop on pancreatic cancer will be presented at the 3rd EU Multi-stakeholder Platform on Pancreatic Cancer meeting, at the European Parliament Brussels (Belgium) on 10 November 2015.

World Medical Association (WMA) draft Declaration

The WMA have produced a draft declaration on ethical considerations regarding health databases and biobanks. This draft is intended for open consultation after acceptance by the Executive Committee for the WMA.  The document is available online.

Recent publications about European Cancer Registries

Articles dealing with Cancer Registries in Europe and published in the last three months period in peer review journals have been selected through PubMed-Medline search. Please find here the list.

ENCR-JRC Workshop on standards and trainings

The JRC is organizing on 24th of November an ENCR-JRC Workshop titled "Defining the road map towards revision of ENCR coding standards and training plan for cancer registries".
The workshop is targeted to selected experts from the cancer registry community, and will be organized as a brainstorming session to discuss and evaluate the priorities in terms of both recommendations (identifying the ones needing an update or new topics to be tackled) and training courses to be planned.
Prior to the meeting, a short questionnaire will be distributed among the workshop participants, aimed at gathering preliminary suggestions to activate discussion. The same questionnaire will be sent also to all the European cancer registries, and is offered you as an opportunity to express your registry needs and requests. Any incoming suggestion will be highly appreciated, and will be considered as proposal for discussion at the workshop. Outcome of the meeting will be a list of priorities to be addressed, that will constitute the basis for the ENCR steering committee to draft a roadmap for the revision of ENCR coding standards and a training plan for cancer registries.