Update on the PancreOs project
The kick-off meeting of the Pancreatic cancer overall survival registry (PancreOs) took place on 17 March in Madrid, Spain. The aim of the meeting was to discuss the feasibility of building a sustainable European pancreatic cancer registry, to consider comparability and exchange of data, and to produce global indicators on the clinical management of pancreatic cancer in Europe. The PancreoOs project collaborates with the Joint Research Centre (JRC) and the European Network of Cancer Registries (ENCR).
All participants agreed to develop a hospital-based European Pancreatic Cancer Registry (PancreOs). The JRC and the ENCR are involved in preparing a data collection protocol taking into account the results of a pilot study carried out in seven hospitals in Spain, existing data collection protocols, and international recommendations.
European Parliament adopted the Data Protection Regulation
14 April 2016
The European Parliament adopted the Data Protection Reform Package including the General Data Protection Regulation. The Regulation updates and modernises the principles enshrined in the 1995 Data Protection Directive to guarantee privacy rights. It focuses on: reinforcing individuals' rights, strengthening the EU internal market, ensuring stronger enforcement of the rules, streamlining international transfers of personal data and setting global data protection standards.
The processing of data concerning health for scientific research purposes is safeguarded: "The processing of personal data concerning health, as a special category of data, may be necessary for reasons of historical, statistical or scientific research. Therefore this Regulation foresees an exemption from the requirement of consent in cases of research that serves a high public interest."
The regulation will enter into force 20 days after its publication in the EU Official Journal. Its provisions will be directly applicable in all member states two years after this date. Member states will have two years to transpose the provisions of the directive into national law. More information can be found here.
European Week Against Cancer
25 - 31 May 2016
The Association of European Cancer Leagues (ECL) are calling on NGOS and citizens to take the opportunity to engage with their elected representatives and Members of the European Parliament (MEPs) to ensure cancer prevention and early detection are on the political agenda. The ECL is also launching a competition for young people to design an infographic focusing on the messages of the European Code Against Cancer. This Code outlines 12 ways to reduce cancer risks. More information is available HERE.
The European Commission Initiative on Breast Cancer (ECIBC)
ECIBC is pleased to announce a call for expression of interest for external experts for more information to support the development of the European Breast Guidelines and the future Quality Assurance Scheme for breast cancer services. For more information on the project please visit the webpage HERE.
The deadline for applications is 10 May 2016 (Midnight CET).
Eurostat Press Release on Deaths Caused by Cancer
This was released on 4 February 2016, World Cancer Day, and reports that, in the European Union (EU), cancer was the cause of death of almost 1.3 million people in 2013, responsible for over a quarter (26%) of all deaths. Men (726 500 death due to cancer) were more affected than women (570 300). In addition, fatal cancer represented more than a third ( 37%) of all deaths for the EU population aged less than 65, while this level was below a quarter (23%) for the older population ( those aged 65 years and over). More information on cancer statistics, produced by EUROSTAT, is available HERE.