Consultancies are provided for ENCR members who wish to discuss a particular area of their registries operation (data collection, management, quality control, analysis, etc.) with an expert in the field. The ENCR steering committee may also suggest such a visit to a registry. Suitable consultants are selected in discussion with the registry concerned. After the visit they prepare a written report and recommendations, circulated to both the Steering Committee and the registry.
The fundamental purpose of the Structured Review process is to evaluate a registry's performance, and to identify positive and negative aspects of a registry's procedures and outputs, taking account of available resources.
A Working Group was established by the ENCR Steering Committee to prepare the framework of the review procedure. The Working Group met in March 2000 to produce a background document and a draft questionnaire to be completed in advance by the registry to be reviewed. A pilot review was then carried out of the Regional Cancer Registry of the Comprehensive Cancer Centre North Netherlands (CCCNN) in Groningen.
A summary of the report prepared after the CCCNN review can be downloaded here
|Cancer registry||ENCR consultacy Team
||Date of visit|
|Cancer Registry in Moldova||Dr. Nadya Dimitrova
Dr. Valentin Babaev
|4-8 November 2013|
Registries that want to be reviewed should send a request to the ENCR Secretariat. More detail on the procedure will then be provided. The team (two people) will be selected by the Steering Committee/Secretariat and will spend 1½ - 2 days in the registry. A review report will be prepared.
The costs for the structured review - travel and per diem for the review team - would normally be the responsibility of the cancer registry.
Working Group on Structured Reviews of Cancer Registries - Background document: