Training courses and workshops

Training on Cancer Registry Data-collection and Comparability

JRC and ENCR organised on 3-4 May 2017 a training on Cancer Data Collection and Comparability with one day devoted to issues related to data collection, and the second day to quality aspects of data analysis. A specific session on childhood cancer registration was included.

Presentations Faculty
 The basic principles of cancer registration Harry Comber
  Exercise. What data sources are available to you? What are their strengths and weaknesses? How do you decide whether to use a source or not?  
Coding systems
Coding primary site Nadya Dimitrova
Coding tumour morphology Otto Visser
  Exercise. Coding exercises in topography and morphology
Otto Visser
Introduction to ENCR and IACR recommendations Emanuele Crocetti / Carmen Martos
  Exercise. Coding exercises based on ENCR recommendations  
Staging and Treatment 
Coding stage: TNM and other staging systems Liesbet Van Eycken / Otto Visser
Introduction to coding treatments – sources, coding systems  Liesbet Van Eycken
  Exercise. TNM exercises
Liesbet Van Eycken / Otto Visser
Childhood cancer 

1) Introduction to childhood cancer registration: differences in data collection from adults; 2) Collecting long-term follow-up data on children with cancer; 3) ICCC update

 Eva Steliarova-Foucher
  Exercise. Evaluation of a childhood cancer dataset  
Quality control and software 
Routine quality control in practice Nadya Dimitrova
ENCR/JRC quality check software: its use in practice Francesco Giusti / Carmen Martos
  Exercise. Interpreting and using the ENCR/JRC quality check outputs  
Staff training 
Registry Manual, Standard Operating Procedures, Staff Training Harry Comber /
Nadya Dimitrova
Preparing data for external users, registry reports  Harry Comber

For any questions regarding the meeting, please contact This email address is being protected from spambots. You need JavaScript enabled to view it.

Training on Quality of Cancer Registry Data

A Training Workshop on Quality of Cancer Registry Data took place on 5 October 2016, as a side event to the Scientific Meeting and General Assembly. About 50 participants attended the workshop which covered the process of data quality evaluation, methods for assessing the completeness of data, use of the JRC-ENCR Quality Check software and reading outputs. The JRC provided feedback on the ENCR-JRC project and the further processing and feedback that will be sent to the registries.

For further details, see below the presentations given at the training.

Speaker Presentation
Nadya Dimitrova The Process of Cancer Registry Data Quality Evaluation
Carlotta Buzzoni The Completeness of Cancer Registry Data
Carmen Martos/ Fancesco Giusti From Harmonization of Quality Check Project to the Development of the JRC-ENCR Quality Check Software

Download here the test dataset used at the training to illustrate the use of the JRC-ENCR Quality Check Software (QCS). More information on the QCS can be found here.